$50k for #TeachEndoNOW! at Hospitals

The #TeachEndoNOW! campaign is expanding to hospitals. Watch Dr. Camran Nezhat’s brief Facebook video above, on how you can fundraise for your local hospital to help establish an endometriosis center, which can include endometriosis expert-vetted educational programs for the general public & local medical students as well.


As you’ll see at the end of the video, there’s also a matching funds offer of $50,000 that Dr. Nezhat & Nezhat Family Foundation will donate to the first five hospitals that participate ($10k each). Some restrictions apply.

To get started, you can contact your local hospital’s volunteer and/or fundraising department, and they will help guide you on how to organize a fundraiser so that proceeds can go directly to their organization & ensure that the funds are earmarked for an endometriosis center.

UCSF, Cleveland Clinic, and the Boston Children’s Hospital are just a few from a growing list that have already successfully established endometriosis centers. We believe this method of having Endometriosis Activists partnering with local hospitals can help accelerate endometriosis awareness efforts with students, the general public, and health care providers from multiple disciplines.

We will coordinate with EndoMarch Chapters on this initiative & will keep everyone posted on additional action plans & progress toward reaching the goals of the #TeachEndoNOW! campaign.

Downloadable resources are listed below, including a double-sided Flyer-Fact Sheet and an Endometriosis Awareness Double-Sided Business Card Template.

1) Flyer-Fact Sheet  – Side 1 & Side 2
postcards TIME out SIDE 1 i correct truly 4 real png

postcards TIME OUT side 2 correct


EndoMarch 2019 Registration

Global March For Endometriosis Awareness

Click here for Team USA Early Bird Registration.

Outside of the U.S.? Click here to find an International EndoMarch near you.

Click here to find a U.S.-based EndoMarch event or chapter near you. Additional EndoMarch events and chapters may be added in the next few weeks, so email us at info@endomarch.org, or check this page periodically for updates.

While our website is under construction, you can click here or visit http://www.endomarchnews.org to keep up with the latest EndoMarch news.

Please feel free to email us at info@endomarch.org, if you have any questions about ENDOMARCH 2019, or other EndoMarch programs. Thank you again for supporting Worldwide EndoMarch, and looking forward to partnering with everyone again to help keep the global Endometriosis Uprising going and growing!

Warm regards,
Barbara & Sofia from the Palo Alto EndoMarch HQ

Jenna’s Story

We wanted to share Jenna’s inspirational story as part of the #MyEndoStory awareness campaign, which was started by @endoconnect and @endo_girl on Instagram. Jenna’s experience is also illustrative of how those with less well-known symptoms, such as back pain, can be particularly susceptible to misdiagnosis. 

Endometriosis Awareness

To all of the women who think they’re going crazy and no one will listen…..

To all of the women who thing they’re going crazy and no one will listen, you are not crazy, you’re just sick, in pain and exhausted. Some of you may know my story, for those who don’t, here it is.

About two months ago I was experiencing terrible back pain. I thought I just had a weak lower back and needed to strengthen and stretch more. Then the pain started moving up into my neck and down into my butt and hamstrings.

I decided to go see a chiropractor and as much as I felt it was helping, I was only getting worse. I started to then have lower pelvic pain. The pain was worsening everyday. I was extremely bloated on top of everything else. My mood changed, I was miserable, I was exhausted from dealing with the pain everyday. I even went to the emergency room a few weeks ago because the pain was just so bad.

The E.R. doctor said they did everything they could and found nothing wrong. So he then suggested a pelvic laparoscopy to rule out endometriosis. My mother had this procedure done before I was born because she was having troubles getting pregnant and was having terrible cycles. So I contacted my gynecologist and we scheduled a pelvic laparoscopy.

I had my surgery done in the morning and by that evening, all of the pain I was feeling was completely gone. I am now two weeks post surgery and I feel better than ever. I started to work out again (once I was cleared by my doctor one week post surgery). My mood is so much better, I have no lower back and pelvic pain.

This surgery was the best thing that ever happened to me, other than me meeting my boyfriend, Michael Evan. He was there for me every step of the way, didn’t matter how nasty I was towards him, he never left my side. He pushed me to keep going, to not throw in the towel. He and I were talking this morning and we said we wished we took pictures of my “endo belly” prior to surgery. When you have endometriosis, you’re bloated, you’re constipated, you’re totally uncomfortable. I didn’t take any pictures prior too because I didn’t know then at the time that it was in fact endometriosis and a cyst as well. I was ashamed to take pictures as well.

Now looking back, it’s crazy to think how much I’ve changed in two weeks. I found a picture similar to how I looked prior to surgery. This woman is showing how you can go from feeling normal to getting the “endo belly” in a matter of minutes.

jenna mazzela share your story myendostory

The top picture is not me but it is similar to how I looked, sometimes I was even worse than that. The bottom picture is the one I took today, two weeks post surgery.

So to all of the women out there that think you are going crazy, you are not. You know your body better than anyone else. Listen to yourself and DO NOT STOP FIGHTING! Fight for your health and your sanity. I say your sanity because endometriosis can cause depression and as well as psychological disorders. So please, please, please, do not give up on yourself. It will be worth it, I promise you. Love, Jenna Mazzella

#endometriosis #endometriosisawareness #worldwideendomarch

UC Berkeley Premed Students Learn about Endometriosis

UC Berkeley Premed student, Lizbeth Nunez, gives up her summer to take part in the Endometriosis Fellowship & Course


“I decided to stay in school for the summer this year and wanted to be more productive than just taking summer courses. I began to look up internships and programs near the UC Berkeley campus, and fortunately, I came across an announcement from a club on campus called the American Medical Women’s Association, with the description of this program.

“Endometriosis”, I read. Hmmm. I was intrigued by the disease, as I was not familiar with it, and decided to look it up. I immediately was interested. The best part of the description was that there was both a fellowship and a course, which I found to be amazing since I would get to learn something new this summer, but also be able to see first hand how it is treated or handled surgically.

The courses not only gave us insight on how this disease came to be, or what factors to consider when trying to solve issues involving treatment and prevention, but it also provided us a first-person point of view of the disease with testimonies with women who were suffering from it. Seeing the pain and troubles it has caused others -and I speak for myself when I say this but am sure similar feelings resonated with my fellow peers- motivated me to try to gain the most knowledge on this topic in the short span of 8 weeks, and see how my involvement could help further EndoMarch’s mission.

As for the clinic and OR rotations, I am lost for words when I try to describe my experiences. Now, I have never shadowed a doctor, but I have volunteered at several hospitals before, and I have friends that have been given the chance to shadow doctors before, and I can say that the exposure I receive with this program is so much more than what is offered in other hospitals.

I commute from Berkeley, CA. to the surgery center located in San Jose, Ca. The commute is very long, and my mornings begin very early to assure that I get to the center on time, since surgeries start as early as 6:30 a.m. I remember waking up on my first day of rotation and wondering what I was getting myself into.

I was very excited and nervous (as most “first days” are). I arrived to the center and explained that I would be an observer for the day. I was escorted to a locker room where I was told to pick out my scrubs, which I was already in awe about, since my thought of an OR observer was pretty much what you see in movies: people in street clothes with tiny notebooks taking notes behind a big glass window that overlooks the operating room.

On the contrary, that is when I found out I would be INSIDE the OR WITH THE PATIENT just a few feet away from me, and that was why we had to wear the scrubs, scrub caps, and procedure face masks. I remember changing and walking into a room where my fellow peers were, who were also eagerly waiting. I tried to seem collected, but internally I was geeking out at the fact that I was in scrubs and was about to see my first live operation.

But with all of this excitement, there was also fear. I was terrified of the thought of seeing someone being operated in vivo. I had seen tons of operations on video, but I knew that was nothing close to the real deal. Fun fact: I also history of fainting with little triggers every time I get my blood drawn, or once when a nurse was taking my blood pressure, or like my most recent being at the optometrist’s office when they dilated my pupils, so I had been told various times that I would not be able to handle seeing, and eventually, performing a surgery.

This was the ultimate test. I remember walking into the OR taking deep breaths and trying to process what I was just about to see. I saw the patient lying there and could see her breathing. Soon after arriving, the operation began. The laparoscopy procedure began, and I stood there in awe. Once I saw the first incisions, I didn’t even think of the possibility of me fainting since I was too astounded at how amazing the human body is and at the precision of the talented surgeons at the center.

There was a big monitor in the room, that projects the video from the camera at the end of a laparoscopic tool. On this monitor, you can see the inside of the patient, including her pelvic cavity, the interior of the uterus, and I was even able to see the interior of the bladder at one point! It was magnificent. Waking up early was definitely worth it.

And the best part is that not only are the surgeons performing the procedure but they explain as they go, announcing important features or pointing out the endometriosis on the screen. This allows us to have an understanding of what the surgical goals and procedures are, but if we have any questions we are also able to ask nearby doctors, who enthusiastically answer our questions.

And, so far, I have been able to see 3 laparoscopies, a salpingectomy, cystectomies, an abdominal myomectomy, and far more procedures that I don’t remember the names off, but know will be soon etched in my memory. I can genuinely say that this has been one of the best opportunities I have ever come across, and the staff I have met are some of the most intelligent and caring people I’ve ever met, finding every possible opportunity to teach us and reminding us consistently that they are encouraging and supportive of us. ”


Endo Article from 1929

If you didn’t notice the date of the endo article listed below from 1929, you could almost mistake it for one written last week instead of last century, nearly 100 years ago. If endo articles from 1929 (or earlier!) are barely distinguishable in their conclusions from those of today, what further proof do we need that endometriosis remains one of the greatest public health failings in the history of modern medicine.

This is why we hope you’ll join us for ENDOMARCH 2019, to let policymakers know that we will no longer abide a status quo which continues to cause so much harm to millions of endometriosis sufferers the world over. Visit the link below to register for ENDOMARCH 2019, or visit http://www.endomarchnews.org, for other ways you can take action today.

Click here for Team USA Early Bird Registration

Outside of the U.S.? Click here to find an EndoMarch International event near you.

#Endometriosis #CalltoArms #EndoHealthCareReformsNow #EndoMarch2019 #ChronicIllness #InvisibleIllness #WomensHealthMatters #GirlsHealthMatters

Click here for the full article
ENDO FACTS 1929 article Endometrial cysts of the ovary Mazer et al

endo article 1929 endometrial cysts of the ovary Mazer et al AJOG PIIS0002937829904701




Saturday, March 30, 2019

Join thousands of endometriosis activists from around the world on EndoMarch Day, Saturday, March 30, 2019, to keep fighting for urgently-needed endometriosis health care reforms.

Click here to pre-register today for select Team USA locations so that you can get a head start on 2019 and a chance for early bird giveaways.  US-based EndoMarch events are free, family-friendly, and open to all. Full event details coming soon.

For those outside of the U.S., click here to find an EndoMarch event in your country

(*NOTE: Some countries have their EndoMarch events on different dates. Check the above-listed page for more details).

The EndoMarch movement has ignited an international endometriosis uprising that has swept across the globe in 60+ countries and counting, leading to dramatically increased awareness and inspiring meaningful policy changes around the world, including here in the U.S., where Senators Orrin Hatch and Elizabeth Warren are spearheading a bipartisan bill to increase federal funding for endometriosis research and public awareness campaigns.

Since our first campaign in 2014, the Worldwide EndoMarch has grown to be the largest, internationally-coordinated endometriosis event & coalition in the world, representing over 100 endometriosis patient advocacy organizations, groups, and medical societies from around the world, which have joined together to fight for change and address the urgent unmet needs of those suffering from endometriosis, a potentially crippling, whole-body chronic disease that is one of the leading causes of gynecologic hospitalization and school absences in adolescent girls. Visit endomarchnews.org to learn more or email us at info@endomarch.org.

Follow us on social media for updates, or email us at info@endomarch.org or visit our blog at endomarchnews.org (website is under construction).


#EndoMarch2019 #Endometriosis #EndoHealthCareReformsNow #GoYellow4Endo #TeamEndEndo #CrowdSourcingfortheCure #EndoMarchFellows #HackEndoConference2019

EndoMarch work with Senators & DOD


We would like to thank the Society for Women’s Health Research (SWHR) for inviting EndoMarch and other endometriosis organizations to Capitol Hill for SWHR-organized Senate Panel Hearings sponsored by Senators Hatch, Warren, and Duckworth, to help address the urgent unmet needs of those suffering from endometriosis. As a result of everyone’s united advocacy efforts, several more U.S. Senators and Congress members are now championing the cause of endometriosis, and are working together to include endometriosis in a bi-partisan LHHS Bill and Report for fiscal year 2019 (F19).

Join our Twitter Thank You Campaign to thank SWHR and all of the following Senators and Congress Members who are taking action to get more support, funding, and awareness for those suffering from endometriosis, and who are supporting endometriosis education in schools initiatives going on now.

Sponsors of the DOD Bill
The Honorable Senators Orrin Hatch (R-UT) and Elizabeth Warren (D-MA)

The Honorable Senator Roy Blunt (R-MO)

The Honorable Senator Tammy Duckworth (D-IL)

The Honorable Senator Patty Murray (D-WA)

The Honorable Congresswoman Rosa DeLauro (CT-03)

The Honorable Congressman Tom Cole (OK-O4)

The Honorable Congressman Rodney Frelinghuysen (NJ-11)

The Honorable Congresswoman Nita Lowey (NY-17)

Click here to give the amazing members of SWHR a shout out on Twitter!

endomarch acog corrected JUST TOP PART WITH LOGOS

Student Fellow Shayla Moore, on her First OR Rotation

Thank you to brilliant premed student, Shayla Moore, for taking time out of her busy schedule to blog about her experiences as a Student Fellow participating in the Endometriosis Fellowship program with Dr. Camran Nezhat and his fellows. You can follow these stories online using hashtag #EndoMarchFellows.

Here’s Shayla’s blog about her first day as an observer in the OR: 

“Upon arrival, myself and 5 others were waiting for the clock to hit 6:30 to see Dr. Wood open up the doors to lead us to everything we had been waiting for.

Waiting in the staff lounge for the patient we would be observing to go under anesthesia, myself and the other student fellows began getting to know each other a little further. We all instantly clicked and were laughing together in no time. We talked about where each of us went to school, if we were planning on going to medical school, how we heard about the program, and how cool it was that we were all able to hear about it in different ways but were now all sitting in the same room.

We all had a mutual feeling of gratitude for everyone who made this program happen, as opportunities as hands on as this one don’t come by often at all for undergraduate students. We laughed and said it was almost too good to be true!

There was a younger girl with her mother within our group who we later found out was unable to take part in the shadowing because of her age. We asked her mother, who stayed with us, if her daughter was interested in medicine and she said yes. She also let us know that she has been diagnosed with endometriosis and told us her story, that after 7 surgeries and a great bond with Dr. Nezhat, she was there with us today to spread awareness and allow herself and her daughter to learn more about the disease. We all thought it was amazing to hear firsthand experiences from someone. It’s one thing to watch an operation but it’s another to communicate with the patient after the operation is complete and get a better understanding of everything they have overcome thus far. Hearing her story strengthened our bond further and reminds us of the impact we want to one day have on the world and the lives we hope to one day be able to change.

Dr. Wood and Dr. Nezhat came to pick us up and we listened to Dr. Nezhat explain how much he enjoys helping the youth in furthering their education. He said that he does it in hopes that one day we will do the same when we are doctors and in a position to help, and that is something I know will stick in my mind forever. He spoke of research opportunities and made it clear that he was there to help us.

After listening, we went into the locker room to get our scrubs on and that’s when reality began to set in for us. We all felt a sense of reward and accomplishment for being in that moment, with our scrubs, face masks and hairnets on, ready to observe. A kind nurse led us to the OR and in my head I still couldn’t believe this was all really happening. I walked in and felt the cold air on my skin and the adrenaline began to set in. I looked at my fellows and everyone’s eyes were glowing. It’s such a nice feeling to share this experience with people who are in similar positions as I am. We all have something to relate to.

While watching the operation every doctor in the room gave us insight in some way, we could tell how excited they were to have us and how eager they were for us to learn. This made us all feel even more welcomed.

After each operation Dr. Wood and Dr. Nezhat were sure to check in with us, asking if we had any questions and made it clear that if we did we could always contact them any time.

Once the day was over and it was time to take off the scrubs, we all couldn’t stop talking about when our next visit would be (we were obviously beyond excited to come back). Dr. Wood and Dr. Nezhat checked in with us one last time and introduced us to a few other doctors who welcomed us warmly. They then let us know they had other appointments to attend and would be leaving but had lunch on the way for us.

Overall, the experience was amazing and I know I can say that for everyone who was observing with me that day. We walked in as strangers but through a mutual love of medicine and changing lives, we left as good friends ready to meet again and learn more. I especially appreciate the doctors for being so kind and open when it came to having us around. They made the environment open for an endless amount of learning and I look forward to being with them soon enough!!”



Interview with Autumn Mendoza Montgomery


Interview with

endomarch share your story Autumn Montgomery picture 1

ENDOMARCH HQ (HQ): Autumn Mendoza Montgomery, thank you for agreeing to be interviewed for the Endo Uprising Digital Magazine! We are so excited to be able to get to know your story and shed some much-needed light on this horrible disease. What were the first symptoms you experienced with Endo? How did your symptoms progress? Do you have classic endo symptoms or atypical? When did you first hear about endo and when did you think you may have it? How long did it take you to get diagnosed?  What is the hardest part about your Endo?
AUTUMN MONTGOMERY (AM): I had been on birth control since I was 14 after having a very abnormal and bedridden menstrual period, so it is unknown how long I have actually had it. When I was almost 25 I got off of birth control because it was affecting me emotionally. Then a few months later, as I was in the airport waiting on an international flight, I got the worst pain in my abdomen. I was so confused and concerned about what it was. The pain shot down through my legs making them almost numb, yet painful. I was crying and in the fetal position on the uncomfortable airport chairs.

Finally, when I got on the plane I realized that I had started my cycle. The pain didn’t minimize to a tolerable state for about 4 hours. A month later the same thing happened, at home, alone, as I was lying on the living room floor unable to move to get medicine or a heating pad. That’s when I made a doctors appointment. The doctor told me I PROBABLY had endometriosis, but there was no way to know for sure without surgery, which they wouldn’t do for diagnosis reasons only.

The hardest part about my endo now, is the unknown. Having to look at my calendar any time I make plans hoping it doesn’t fall on the first few days of my cycle while I am in immense pain. I am constantly on edge at work during those times just praying it won’t flare up until I am home.

 HQ: What is your craziest doctors story? Either positive, negative, or neutral. Did you almost die from surgery or have you ever experienced severe adverse side effects from medications?

AM: I don’t really have a crazy story regarding Endo. Nothing in particular at least. To me, every monthly cycle is crazy because it is almost like I forget how unbelievably bad the pain is until it hits again.

 HQ: The birth control pill or other synthetic hormone contraceptives are often prescribed as a first treatment for those with endometriosis. Have you had different hormonal treatments? If so what was your experience? 

AM: I was given the IUD about a year after the diagnosis. The insertion while having Endo is a whole other thing. It eliminated my periods, therefore eliminating endo pain for almost two years. Unfortunately, IUD’s often cause ovarian cysts. It did this for me. I had several painful ones, but one that grew the size of a peach that rendered me practically immobile. I was on leave from work for weeks before finally getting surgery. The benefit from the surgery was that they were able to identify and remove endo from my ovaries. The recovery was not as I expected, and instead of missing 10 days of work like I was told, I ended up needing almost 3 weeks. They said that it is probably do to the fact that it wasn’t only a cyst removal, but scraping the endo probably left scar tissue that was taking longer to recover from.

 HQ: The opioid crisis is at an all time high and very prevalent in the news. As a chronic pain sufferer, what is your opinion on the use and reported abuse of opioids? Do you think the crackdown on opioids should pertain to those with Endometriosis, why or why not? If you had chance to speak on Capitol Hill to lawmakers about this issue, what would you say? If not opioids, what alternative therapies do you think women with endo need to be informed about and that need more attention?

AM: I personally do not like taking any medications except Ibuprofen or Tylenol.  However, these do not work for Endo. They don’t even take the edge off. I have Norco prescribed to me, but rarely ever take it simply because I do not like the way that I feel on it. Also, even the norco does not eliminate the pain completely. I would say for me it probably takes it to a healthy women’s very bad menstrual cramps. Not fun, but manageable. My doctor has recommended acupuncture to me but unfortunately it isn’t covered by my insurance so it is just not affordable.

I think the opioid crisis is a very real and serious issue. Unfortunately women with endo simply do not have a choice when we have a flare up unless you want to just endure the pain.

HQ: What do you want people to know about Endo and being an Endo Sister?

AM: This disease affects your whole life. It may seem minimal compared to other horrible diseases, but it needs to be considered one of them. No matter how spiritual, healthy or on top of it we are, it is always there. Sometimes I think it is a good thing that no one knows how it starts, so that I don’t blame myself. However, it is beyond frustrating when there is so little known about a condition that affects my whole life and puts me in such severe pain several days out of every month. Those of us who have it, please do not stay quiet. Talk about what its like, share your story. Because you are most definitely not alone.

Also, one thing that I haven’t read about anywhere but both my doctor and myself have experienced is pain during any other female procedure. Pap smears, although uncomfortable for all women, are extremely painful for me. IUD insertions, tampons, sometimes sexual intercourse, literally everything that has to do with that part of my body is painful most of the time.

HQ: Can you tell us about the journey that inspired you to tell your powerful story and fundraise for endometriosis? Was there ever a time where you were uncomfortable telling your story? Why? 

AM: I am a very open person so I have never felt uncomfortable sharing my story. And I have always wanted to do more and help in any way I can. But this past February was really the pushing point for me. I was able to get pregnant, relatively quickly for someone with endo. But at 10 weeks, I lost the baby. There is no way to know for sure if it was natural causes or if endo caused me to lose my child. But at that moment, I promised my baby that I would do everything I could to help others with this condition so that they may never have to suffer the pain of a miscarriage because of this disease.

HQ: Where would you like to see yourself in 5 years?

AM: I would love to say that I will have a child by then. But with this condition, that is unknown. I would like to participate more and fight for awareness and a cure. And, on a far less happy note, if I have had a child, I will most likely be on a surgery table getting a hysterectomy. As hard as it is to make a decision to take out what I feel encompasses so much of my womanhood, I can’t imagine continuing to live my life in this kind of pain. I want my freedom. And at this point in the progress for a cure, a hysterectomy at 35 years old is my only option.

HQ: What is an insight or a piece of advice you wish someone would have told you when you first got diagnosed? Is there anything else you wish to say about endo, advocacy, awareness, or life in general? 

AM: I am far luckily than most to have a wonderful doctor who suffers from endo herself (not that I am glad she suffers, but the care is so much more empathetic). When I was told, she was very informative and compassionate, giving me all the information she had as well as everything she herself had experienced.

There is one thing that I wish I would have known. I wish I would have known how much it would truly affect all aspects of my life. I was told it would be painful during my periods, but I never put together how much that would affect my planning, vacations, work schedule, relationships, etc. Perhaps it was better to not scare me all at once with this information, but it may have helped me sooner.

The one positive thing that I have gotten from dealing with this condition is an overall understanding of my body as a woman. I am so in tuned with my cycles, my pain, the overall state of how my body is feeling that it has given me a deeper understanding of myself. I can sense when the pain is coming, I can sense when I am going to have a flare up one day. Many women live without truly understanding what is going on within their body, endo has forced me to figure it out. I suppose you have to try to find the silver lining in anything, even pain.

HQ: Thank you so much again, Autumn, for taking time out of your busy day to bravely share your story, which will no doubt be a source of strength and inspiration for other Endo Sufferers, but can also help physicians and researchers gain further insight into the heterogeneity of symptoms & effects of treatment, which is absolutely crucial for improving treatments and steering us one step closer to the cure.

Thank you to Good Morning America for covering endometriosis, which can be viewed on this link, and, most especially, thank you to Halsey for bravely sharing her story.

#EndoActivists from around the world, including early pioneers like Mary Lou Ballweg, Deborah Bush, Heather Guidone, Anna Jamieson, Kathleen King, and many others, are the ones who have helped make this increased coverage of endometriosis possible.

Even with increased awareness, tragic consequences stemming from inadequate care and insufficient research funding are still unfolding daily, making endometriosis one of the greatest public health catastrophes in modern history, Hoping we are finally reaching the long-awaited tipping point, when research funding is comparable to other similarly prevalent chronic diseases and those suffering experience ZERO years of diagnostic delays.