ABOUT

ENDOMETRIOSIS: TIME TO END THE SILENCE
Drs. Camran, Farr, Ceana and Azadeh Nezhat, and Barbara Page founded and sponsor Worldwide EndoMarch and World Endometriosis Day events around the world to raise awareness about endometriosis, an estrogen-dependent, whole-body chronic disease that can potentially cause crippling pain, organ damage, infertility, and other severe medical consequences if inadequately treated.

Although one rarely hears about it in the news, endometriosis is actually common, affecting at least 1 in 10 women and girls, usually of reproductive age; that’s roughly 8-10 million people in the U.S., 200 million worldwide, and about ten times the prevalence of autism. While endometriosis most commonly affects the reproductive system, it can spread and cause damage to the lungs, bladder, bowel, diaphragm, nerves, and muscles.

Despite these alarming facts, unfortunately, for thousands of years endometriosis pain has been accepted as normal. Thus, mothers teach their daughters that it’s normal and teachers from high school to medical school teach their students that it’s normal. The end result is that women and girls suffer for years with excruciating pain and preventable organ damage before receiving the proper medical care that they need.  By the time patients do receive medical attention, it’s often too late; organs and fertility and lives have already been severely damaged. Teenage and pre-teen girls as young as 7-9 years-old can develop endometriosis and are particularly susceptible to misdiagnoses, making this an especially heartbreaking epidemic.

This is truly a global public health crisis, which is why the founders felt that the only way to end this centuries-long saga of unnecessary suffering was to organize internationally-coordinated awareness campaigns and programs, to let the world know that endometriosis is not just ‘bad cramps’, but is in fact one of the most painful, potentially crippling chronic diseases on record.

Join the global EndoMarch movement to help us end the silence about endometriosis, so that millions of women and girls can receive a proper diagnosis, quality medical care, and, hopefully one day, a much-needed cure.

HOW YOU CAN HELP
If you would like to learn how you can get involved with the global EndoMarch movement to end the silence, just send us a note at info@endomarch.org, or on our Facebook Page., and one of our volunteer team members will be happy to assist you!

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