If you can’t make an EndoMarch event, another way to get involved in endometriosis awareness outreach is to participate in one of the Facebook ‘letter-writing’ campaigns going on now.
WRITE TO JOURNALISTS/NEWS OUTLETS
Each year at around this time, countless endometriosis advocates and their supporters post Facebook messages to their local newspapers and TV stations, to encourage journalists to cover the topic of endometriosis during the month of March, for Endometriosis Awareness Month. Others have also organized social media letter-writing campaigns to TV shows like the Ellen DeGeneres Show, Good Morning America, and the Today Show.
To help with these campaigns, we created the following template letter that could be copied & pasted as is, or customized as you like, and then posted onto the Facebook pages of your local news organizations, TV shows, or others in the media. (The letter is very similar to the one used for the Petition Congress campaign, but it has been modified to be suitable for reaching out to journalists and media outlets).
TO: Health Journalists of America
RE: Global March for Endometriosis Awareness
Dear [insert name of news outlet and/or journalist here],
I am one of the thousands of endometriosis advocates who’ll be supporting the upcoming Worldwide EndoMarch, taking place on Saturday, March 24, 2018, in dozens of cities around the world, including in the U.S. cities of Atlanta, Boston, Bluffton, New York City, San Francisco, and Washington, D.C.
CRUEL, CRIPPLING, & INCURABLE
Endometriosis is an incurable, chronic disease that can potentially cause incapacitating pain, organ failure, infertility, and other severe and sometimes life-threatening medical consequences if inadequately treated.
Endometriosis has been described as one of the most painful diseases on record, is the third leading cause of gynecologic hospitalization, and is the leading cause of the estimated 600,000 hysterectomies performed each year in the U.S. (despite the fact that a hysterectomy cannot actually cure endometriosis).
However, endometriosis is not just a reproductive tract disease, but one which can potentially cause severe chronic symptoms throughout the entire body, such as system-wide crippling pain, severe chronic fatigue, immune & endocrinologic dysfunction, and damage to multiple organs and tissues, including the bowel, bladder, ureters, diaphragm, muscles, musculoskeletal structures, nerves, lungs, and liver.
And, although one rarely hears about it in the news, endometriosis is actually common, affecting at least 1 in 10 women and girls, usually of reproductive age. That works out to roughly 10 million people in the U.S., 200 million worldwide, and about 8 times the prevalence of autism.
DEVASTATING DISEASE STILL LARGELY IGNORED
Despite these alarming facts, endometriosis continues to be one of the most urgent yet ignored public health issues of our time, and those afflicted face unacceptably lengthy diagnostic delays of up to 10 years or more. Some have even gone 20-40 years without a proper diagnosis.
This is truly appalling, and we ask today:
‘How many more women and girls will be harmed before endometriosis is recognized as an urgent public health issue?’
WE NEED YOUR HELP
We need your help. With gynecologic-related diseases still steeped in stigma, it’s been an uphill battle to get the issue of endometriosis covered in the news. That’s why it would mean so much to the millions of women and girls across our nation, whose lives have been devastated by this invisible disease, if you would consider covering this urgent public health issue this March, during Endometriosis Awareness Month.
50+ COUNTRIES MARCHING WITH US
Our sister chapters from over 50+ countries will also be marching with us on EndoMarch Day, and so we hope you as well will consider supporting this global movement, so that we can be the generation that finally takes a stand against centuries of silence, suffering, and shame. After all, women shouldn’t have to march in the streets in the first place to receive basic medical care. The millions who suffer from a disease described as more painful than child birth labor deserve better.
Thank you for considering our cause.
[Insert your name]
Endometriosis Advocate & Concerned Citizen
SATURDAY, MARCH 24, 2018
#Endometriosis #EndoMarch2018 #1in10 #WeNeedaCure