INAPPROPRIATE MEDICAL CARE CAUSING SIGNIFICANT HARM
The United States of America does not invest enough in the health of millions of its citizens who suffer from Endometriosis. Endometriosis is as prevalent as diabetes in women, yet receives only pennies on the dollar in federally-funded spending on research and public health awareness campaigns.
The millions of women & girls affected by endometriosis (1 in 10) can face a lifetime of severe outcomes & symptoms throughout the entire body, including incapacitating pain, organ failure, repeat surgeries, infertility, increased risk for cardiovascular disease, increased risk for certain cancers, immune & endocrinologic dysfunction, severe chronic fatigue, and damage to multiple organs and tissues, including the bowel, bladder, ureters, diaphragm, muscles, musculoskeletal structures, nerves, ligaments, lungs, and liver.
UNCONSCIONABLE DIAGNOSTIC DELAYS & FAILED TREATMENTS
The potential for significant harm is compounded further when you factor in diagnostic delays averaging 6-10 years or longer, and grossly inadequate or inappropriate medical care that includes multiple failed treatments that don’t work and/or cause severe injury from adverse side effects. There is no cure for endometriosis and no known cause.
Something must change.
The millions of women & girls who suffer from this excruciating, chronic disease deserve better. The United States of America must protect its citizens with endometriosis from further harm. You can help by joining the Petition Congress campaign , to let our government know that endometriosis is a public health crisis that needs to be addressed before another generation of women & girls suffers irreparable harm.
We can’t wait any longer for change to happen. We need congress to act. We need Endometriosis Health Care Reform now.
Camran Nezhat, M.D.,
Founder, Worldwide EndoMarch & World Endometriosis Day
STANDARDS OF CARE REFORMS IGNORED FOR DECADES
As an endometriosis specialist, Dr. Camran Nezhat has been advocating for standards of care reforms since the 1980s. The three central tenants of Dr. Nezhat’s published endometriosis management guidelines include:
1) Symptomatic women & girls should be referred to experienced endometriosis specialists for an appropriate diagnostic video-laparoscopy, with histopathological confirmation of disease;
2) Complete & safe surgical eradication of all visible disease should be performed by specialists at the time of the diagnostic video-laparoscopy, and in collaboration with a multidisciplinary team;
3) Hormones or other medical treatments should not be prescribed without a proper, surgically-confirmed diagnosis.
INSURANCE DENIALS, HORMONES PRESCRIBED WITHOUT DIAGNOSIS
Despite proposing these gold standard management guidelines decades ago, many in the medical community still do not follow these expert recommendations, while in other cases access to appropriate care is made difficult by health insurance policies that deny coverage to those seeking specialists outside of their network.
Meanwhile, prescriptions for hormones or other medical treatments never seem to be denied by insurance companies, despite the fact that a surgically-confirmed diagnosis of endometriosis may not have been obtained, and despite the known high risks of treatment failure or severe injury due to adverse side effects.
This is why it’s clear that we need government intervention, in order to protect women and girls with endometriosis from further harm. Join the fight for Endometriosis Health Care Reform Now by signing this Petition to Congress .
PETITION CONGRESS FLYER